My heart aches as I witness my son’s daily struggle with KID syndrome and Ichthyosis. His skin, instead of being smooth and supple like others, resembles a layer of rigid scales. The condition seems to compress his delicate flesh, causing him immense discomfort. Each day, he endures the physical and emotional pain, navigating a world that often fails to understand his unique challenges. Despite the difficulties, my son’s resilience and strength continue to inspire me, and I remain hopeful that advancements in medical research will one day alleviate his suffering.
My heart aches as I witness my son’s daily struggle with KID syndrome and Ichthyosis. His skin, instead of being smooth and supple like others, resembles a layer of rigid scales. The condition seems to compress his delicate flesh, causing him immense discomfort. Each day, he endures the physical and emotional pain, navigating a world that often fails to understand his unique challenges. Despite the difficulties, my son’s resilience and strength continue to inspire me, and I remain hopeful that advancements in medical research will one day alleviate his suffering.